Hypopara UK

WowCode: G180872

Hypopara UK
phone
Hypopara UK
WowCode: G180872
Hypopara UK logo
£ 210
9 supporters      2 donations

Hypopara UK is the national patient organisation dedicated to supporting adults and children living with a parathyroid condition and to improving the diagnosis, prevention and treatment of all forms of hypoparathyroidism and hyperparathyroidism.

Living with a long term rare disease can be challenging so we offer support and information to empower patients and their families to become involved and active in the management of their condition through our website, leaflets, online forums , facebook groups and telephone helplines. A rare condition can also be isolating so we bring people together online and in local groups around the UK and Ireland.

To increase a global awareness of hypopara and to create a louder voice we have established a World Hypopara Awareness Day on June 1st, and we work closely with, and have founded, hypopara organisations around the world.

We work closely with our Clinical Advisory Team in the UK, a group of renowned endocrinologists with a particular interest in calcium homeostasis and bone metabolism, to raise awareness and better medical understanding of this condition, develop new protocols and advance research into more effective treatment. We have helped to bring about the first global clinical trial for a new parathyroid hormone treatment and the first clinical guidelines on the treatment and management of hypoparathyroidism. We are run entirely by volunteers who are dedicated to improving the lives of people living with these challenging conditions.

Hypopara UK is the national patient organisation dedicated to supporting adults and children living with a parathyroid condition and to improving the diagnosis, prevention and treatment of all forms of hypoparathyroidism and hyperparathyroidism.

Living with a long term rare disease can be challenging so we offer support and information to empower patients and their families to become involved and active in the management of their condition through our website, leaflets, online forums , facebook groups and telephone helplines. A rare condition can also be isolating so we bring people together online and in local groups around the UK and Ireland.

To increase a global awareness of hypopara and to create a louder voice we have established a World Hypopara Awareness Day on June 1st, and we work closely with, and have founded, hypopara organisations around the world.

We work closely with our Clinical Advisory Team in the UK, a group of renowned endocrinologists with a particular interest in calcium homeostasis and bone metabolism, to raise awareness and better medical understanding of this condition, develop new protocols and advance research into more effective treatment. We have helped to bring about the first global clinical trial for a new parathyroid hormone treatment and the first clinical guidelines on the treatment and management of hypoparathyroidism. We are run entirely by volunteers who are dedicated to improving the lives of people living with these challenging conditions.

Hypopara UK

Charity number:

Tel: 01342 316315

Address:

Website: http://www.hypopara.org.uk